WHAT is it?
Skin condition where pale white patches appear on the skin. It’s a loss of melanin pigment in the skin. It is considered to be an “autoimmune” condition in which the body’s own immune system rejects some of its cells.
WHY is it a problem that needs addressing?
From my experience I believe it needs addressing as it’s something people suffer in silence. The doctors don’t consider it as something which need addressing as it’s not life threatening
HOW is it created/medical story?
It just appears……. medically said to be hereditary and can occur because of stress
WHAT are the stats?
Affects about 1% of worlds population.
Treatments: (please note I’m not recommending any of the below as some treatments which work for one may not work for another. For more detail please refer to the vitiligo society.)
WHY are people hiding it?
Well it depends where people have it. When I had it on parts of my body which I covered with clothing everything was fine until I went on the beach or was wearing an outfit which revealed the vitiligo. However when it’s on hands or face it becomes harder to hide. There is coverup available however I didn’t find it worked for me
HOW does it play out in people’s live?
Cause lack of self esteem and confidence. Can also cause people to be less sociable
Social stigma in India
In india it is called “safer dag” and it carries much more stigma compared to other developed nations. In India due to lack of education and deeply rooted superstition, Vitiligo is considered as punishment of past sins. Young women and men face matrimonial issues, problems getting jobs due to this.
Some people believe “ugly white spots” are God’s punishment ie a sign of sin.
Shake my hand campaign
“Shake my hand, spread the word that vitiligo is not contagious, it’s not ugly, it’s beautiful.”
This tshirt represents me shaking hands with someone who doesnt have vitiligo and is to show that its not contagious. By shaking hands with me you “wont” catch vitiligo.
I am looking for a company to sponsor this t-shirt which can then be used at vitiligo events worldwide and spread the word “vitiligo is not contagious.”
Ive chosen to set up a charity so that i can continue doing the work im doing as since January I have been funding my campaign myslef. There is no cure for vitligo the money raised will be used to help those suffering with vitiligo by providing education and for further research into vitilgo where i will be interviewing experts and putting that information onto my you tube channel.
Vitiligo and kids
I’ve been talking about acceptance and self love being the best thing to heal vitilgo. I got vitiligo when I was 11 and spent years looking for treatment and healing myself when I’ve now learnt to accept it my nephews now got it in the last month. He’s only 3 years old and has developed patches on his forehead. My main concern was how will he be treated at school, bullying.
Strange world but a sign to continue the work in doing.
So now I’m looking at how vitiligo effects kids for example bullying and seeing what treatments are available.
© 2018 Ninu Galot – all right reserved